Descripción
Governance of biobanks digital society
This book addresses the governance of biobanks in modern digital societies, proposing an ethical framework to balance participant rights with the demands of data-intensive research.
Puntos clave:
- Conceptualizes an ethical governance framework for biobanks.
- Aligns biobank governance with the digital health data paradigm.
- Advocates for transparency, data protection, and inclusive participation.
«The Governance of Biobanks in the Digital Society» explores the evolving role of biobanks within data-driven biomedical research, spotlighting the ethical, legal, and societal challenges. The book conceptualizes a model for biobank governance, emphasizing transparency, data protection, and public participation. Bridging gaps between existing regulations and ethical guidelines, it proposes solutions to unsolved bioethical issues by redefining governance from a participant-data perspective. Rooted in bioethical principles, this framework aims at effective integration with digital innovations while safeguarding constitutional values and public trust.
Público objetivo destinatario: Expertos legales en Bioética, Derecho de la Salud, e investigadores en Ética Biomédica.
Autora: Sofia Lacomussi
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